sábado, 9 de mayo de 2026

RARE REV-inar episode 026 - Rethinking standards of care in rare diseases: what we can learn from myasthenia gravis Fecha y hora 13 may 2026 10:00 a. m.

https://us02web.zoom.us/webinar/register/WN_iDFyATGPRg-MC-kYC8GJHg#/registration Myasthenia gravis (MG) has a patient community that pushed hard to be listened to. Now, the focus is on translating scientific and medical advances into tangible progress for those living with the condition. Join us for "Rethinking standards of care in rare diseases: what we can learn from myasthenia gravis" on May 13th 2026 2pm BST. Learn how stakeholders are coming together to address problems and improve lives.

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