Launch of Rare Barometer survey results: The mental health of people living with a rare or undiagnosed condition and their family members May 2026

https://www.eurordis.org/rare-barometer-results-webinar/ The findings from our most recent Rare Barometer survey will be presented during the webinar “Living well: The mental health of people living with a rare or undiagnosed condition and their family members”, led by Jessie Dubief, EURORDIS Social Research Director and Rare Barometer Programme Lead. Join us to explore what the new findings reveal, and how they can help shape rare disease policy discussions across Europe. 🗓️ Date: 18 June 2026 Join our Rare Barometer team on 18 June 2026 for a webinar revealing the results of its recent survey on the mental health and wellbeing of people living with a rare or undiagnosed condition, and their family members. The findings provide important insights into wellbeing, support systems and unmet needs across the rare disease community. https://www.eurordis.org/rare-barometer/english/