Europe can already lead in rare diseases – it just needs a plan

https://www.theparliamentmagazine.eu/partner/article/europe-can-already-lead-in-rare-diseases-it-just-needs-a-plan The Parliament magazine, an official Media Partner of ECRD 2026, has published an article by our Head of Policy & Public Affairs Valentina Bottarelli, arguing for a dedicated EU Action Plan for Rare Diseases. Valentina highlights how Europe already has the expertise, innovation capacity and collaborative networks to become a global leader in rare disease healthcare, but adds that stronger coordination and political commitment are essential to turn progress into meaningful change for patients.