Fatal anaphylaxis registries data support changes in the who anaphylaxis mortality coding rules | Orphanet Journal of Rare Diseases | Full Text

Fatal anaphylaxis registries data support changes in the who anaphylaxis mortality coding rules | Orphanet Journal of Rare Diseases | Full Text

Fatal anaphylaxis registries data support changes in the who anaphylaxis mortality coding rules

• Luciana Kase TannoEmail author,
• F. Estelle R. Simons,
• Isabella Annesi-Maesano,
• Moises A. Calderon,
• Ségolène Aymé,
• Pascal Demoly and
• on behalf of the Joint Allergy Academies

Orphanet Journal of Rare Diseases201712:8

DOI: 10.1186/s13023-016-0554-4

©  The Author(s). 2017

Received: 2 September 2016

Accepted: 13 December 2016

Published: 13 January 2017

Abstract

Anaphylaxis is defined as a severe life-threatening generalized or systemic hypersensitivity reaction. The difficulty of coding anaphylaxis fatalities under the World Health Organization (WHO) International Classification of Diseases (ICD) system is recognized as an important reason for under-notification of anaphylaxis deaths. On current death certificates, a limited number of ICD codes are valid as underlying causes of death, and death certificates do not include the word anaphylaxis per se. In this review, we provide evidences supporting the need for changes in WHO mortality coding rules and call for addition of anaphylaxis as an underlying cause of death on international death certificates. This publication will be included in support of a formal request to the WHO as a formal request for this move taking the 11th ICD revision.

Keywords

Anaphylaxis Classification International Classification of Diseases Mortality World Health Organization