EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org

EURORDIS TV

Compelling videos from the rare disease community on EURORDIS TV Tuxes for Tia - a film illustrating the daily challenges of living with Phenylketonuria (PKU) and why staying on the "diet for life" is essential. Produced in partnership with the National PKU Alliance, this film illustrates the daily challenges of living with PKU... and why staying on the "diet for life" is so essential. Video via http://www.pkulife.tv NEWS & CURRENT ISSUES CHANNEL + Alpha-1 Awareness Month 09.11.2014 5:44 Scientists Track Link Between Ebola and Rare Genetic Disease 03.11.2014 3:18 Susan Etlinger: What do we do with all this big data? 20.10.2014 12:27 Webinar: European Year for Rare Diseases 24.10.2014 56:40 Join the campaign to make 2019 the European Year for Rare Diseases. 25.09.2014 3:31