miércoles, 3 de diciembre de 2014

EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org



EURORDIS TV
Compelling videos from the rare disease community on EURORDIS TV
Tuxes for Tia - a film illustrating the daily challenges of living with Phenylketonuria (PKU) and why staying on the "diet for life" is essential.
Produced in partnership with the National PKU Alliance, this film illustrates the daily challenges of living with PKU... and why staying on the "diet for life" is so essential. Video via http://www.pkulife.tv
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Alpha-1 Awareness Month
09.11.2014
5:44
Scientists Track Link Between Ebola and Rare Genetic Disease
03.11.2014
3:18
Susan Etlinger: What do we do with all this big data?
20.10.2014
12:27
Webinar: European Year for Rare Diseases
24.10.2014
56:40
Join the campaign to make 2019 the European Year for Rare Diseases.
25.09.2014
3:31

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