Genomics|Update|Current: Ethics, Policy and Law

Genomics|Update|Current

Ethics, Policy and Law

Anticipate and Communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts,  [PDF 1.73 MB] Presidential Commission for the Study of Bioethical Issues, Dec 2013

US Bioethics Commission report on incidental findings, PHG Foundation, Dec 17

The Bioethics Commission on Incidental Findings
Amy Gutmann, Science, December 13 

Characteristics associated with informed consent for genetic studies in the ACCORD trial 
Simons-Morton DG, et al. Contemp Clin Trials 2013 Dec

Medics should plan ahead for incidental findings- US bioethics commission weighs in on debate over how scientists and companies should handle inadvertent discoveries in diagnostic tests.
Erika Check Hayden, Nature Dec 12

Mining the human genome after Association for Molecular Pathology v. Myriad Genetics
Barbara J Evans, Genetics in Medicine, Dec 19 

Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases 
Kleiderman E, et al. J Med Ethics 2013 Dec

Who should control genomic data? 
Am J Med Genet A 2014 Jan;164(1): x–xi

ELSI* and the implemention of WGS / WES in clinical practice, PHG Foundation, Dec 17

David vs Goliath. But who is who?  Stephan Struve, Genome Alberta, Dec 3