Ethics, Policy and Law
Anticipate and Communicate: Ethical management of incidental and secondary findings in the clinical, research, and direct-to-consumer contexts,
[PDF 1.73 MB]
Presidential Commission for the Study of Bioethical Issues, Dec 2013
US Bioethics Commission report on incidental findings,
PHG Foundation, Dec 17
The Bioethics Commission on Incidental Findings![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_sxXumhA0XhqAQe-hpLoK75Gyq9-v-u71VvR2bJtPKvm5vpwZxiV8uusAW0r1K_c9XSTb6xnvITXkH9t7QIGC8PmczeMr6n8f0sHMejQSA3xtjWv6z8XY8r=s0-d)
Amy Gutmann, Science, December 13
Characteristics associated with informed consent for genetic studies in the ACCORD trial
Simons-Morton DG, et al. Contemp Clin Trials 2013 Dec
Amy Gutmann, Science, December 13
Characteristics associated with informed consent for genetic studies in the ACCORD trial
Simons-Morton DG, et al. Contemp Clin Trials 2013 Dec
Medics should plan ahead for incidental findings- US bioethics commission weighs in on debate over how scientists and companies should handle inadvertent discoveries in diagnostic tests.![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_sxXumhA0XhqAQe-hpLoK75Gyq9-v-u71VvR2bJtPKvm5vpwZxiV8uusAW0r1K_c9XSTb6xnvITXkH9t7QIGC8PmczeMr6n8f0sHMejQSA3xtjWv6z8XY8r=s0-d)
Erika Check Hayden, Nature Dec 12
Erika Check Hayden, Nature Dec 12
Mining the human genome after Association for Molecular Pathology v. Myriad Genetics![External Web Site Icon External Web Site Icon](https://lh3.googleusercontent.com/blogger_img_proxy/AEn0k_sxXumhA0XhqAQe-hpLoK75Gyq9-v-u71VvR2bJtPKvm5vpwZxiV8uusAW0r1K_c9XSTb6xnvITXkH9t7QIGC8PmczeMr6n8f0sHMejQSA3xtjWv6z8XY8r=s0-d)
Barbara J Evans, Genetics in Medicine, Dec 19
Barbara J Evans, Genetics in Medicine, Dec 19
Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
Kleiderman E, et al. J Med Ethics 2013 Dec
Kleiderman E, et al. J Med Ethics 2013 Dec
Who should control genomic data?
Am J Med Genet A 2014 Jan;164(1): x–xi
Am J Med Genet A 2014 Jan;164(1): x–xi
ELSI* and the implemention of WGS / WES in clinical practice,
PHG Foundation, Dec 17
David vs Goliath. But who is who?
Stephan Struve, Genome Alberta, Dec 3
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