miércoles, 27 de enero de 2010

5th European Conference on Rare Diseases ECRD 2010

Best Poster Award!

We are calling for abstracts on "Services to Patients, Families and Carers".

The basic text of your abstracts should not exceed 300 words.
Use the following website: www.rare-diseases.eu/2010/On-line-submission-form

If your poster is selected among the best posters submitted to the 5th European Conference on Rare Diseases, you will benefit of:

1. an article in the conference report
2. an article in Eurordis newsletter

In addition, we have engaged discussions for a publication in the supplement of a medical journal with an impact factor of 1.7

The authors of the 2 best posters will receive an award at the Welcome Reception and their participation to ECRD 2010 will be covered by the organisers.

Submit an abstract before 28 February 2010!

ECRD 2010 will address:

* How to improve access to orphan drugs?
* Is there an upper limit above which society is not willing to pay for a single patient?
* What is the best policy for Centres of Expertise for Rare Diseases?
* What are the determinants of research for rare diseases?

And many more topics!
See the programme of ECRD 2010.

Register to the 5th European Conference on Rare Diseases ECRD 2010 in Krakow now!

May 13, 14 & 15
Jagiellonian University - Auditorium Maximum

Special rates if you register before 28 February 2010!
Click here to register

All other information about the conference:

The conference will be interpreted in:

Themes of ECRD 2010

1.National strategies and plans for rare diseases
2.European Reference Networks and Centres of Expertise for Rare Diseases
3.Science from the bench to the bed side
4.Information and Medical Education
5.The European Committee for Rare Diseases
6.Policy scenarii for rare diseases
7.Rare diseases in Central/Eastern Europe
8.Services to patients, families and carers

Fellowship programme
For patient representatives from Eastern European countries who can understand English, the organisers are pleased to announce a fellowship programme that will offer:

Registration fee exemption
Travel (economy class)
Two nights accommodation
To apply to the fellowship programme download the application form and send it by email to :
or by fax to + 33 1 56 53 52 15

Programme Committee
Cochairs of the programme committee:

Torben Gronnebaek Rare Disorders Denmark
Prof Josep Torrent I Farnell Fundacio Dr. Robert
Other members

Mrs Dorica Dan - Romanian Alliance of Rare Diseases Organisations
Mr Pawel Wojtowicz - Cystic Fibrosis Poland
Mr Rainald von Gizycki - Retina Europe
Mr John Dart - Debra United Kingdom
Mrs Lia van Ginneken - European Myeloma Platform
Dr Ségolène Aymé - Orphanet, RDTF
Prof Tomasz Grodzicki - Faculty of Medicine Krakow
Dr B. Dembowska-Baginska - COMP member, Poland
Dr Frits Lekkerkerker - Dutch Steering Committee on Orphan Drugs WGM
Dr Kerstin Westermark - COMP Chair, EMEA
Mr Jakub Adamski - Ministry of Health, Poland

Contact us!
The project leader is Yann Le Cam, Eurordis CEO.

Please contact the project coordination:
François Houÿez
Eurordis - Plateforme Maladies Rares - 102 rue Didot - 75014 Paris, France
Tel: + 331 56 53 52 18
email: kasia.peala@eurordis.org

The Polka team

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