viernes, 13 de noviembre de 2026

Just one month to shape WHO’s rare disease plan. Europe wants a say

https://euperspectives.eu/2026/10/who-global-rare-disease-plan-public-comment-europe-priorities/ Our Head of Policy and Public Affairs, Valentina Bottarelli, was quoted in a recent EU Perspectives article on the World Health Organization’s (WHO) Global Action Plan on Rare Diseases. She highlighted how EURORDIS’ European Blueprint for Rare Diseases could help shape global priorities, while stressing the need for European Commission commitment to turn the Blueprint’s proposals into a future EU Action Plan.

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