Advancing Clinical Trials for Rare and Ultra-Rare Diseases

Advancing Clinical Trials for Rare and Ultra-Rare Diseases RealiseD is set to generate a novel comprehensive methodological and operational approach to design and conduct clinical trials for rare and ultra-rare diseases. https://realised-ihi.eu/ Patient Survey The IHI RealiseD project, to which EURORDIS has contributed, launched its Patient-Centred Survey on Clinical Trials in October. The survey aims to better understand the needs of people living with rare diseases, their families and carers, as well as the barriers they face when participating in clinical trials. By sharing their experiences, respondents can help make rare disease clinical research more accessible, inclusive and patient-centred. Take the survey now. https://survey.erknet.org/#/s/kjcpbfqqtr