A Family’s Journey with Prader-Willi Syndrome by Chad Birt| Published on: Nov 5, 2026

A Family’s Journey with Prader-Willi Syndrome by Chad Birt| Published on: Nov 5, 2026 Maria Picone, co-founder and CEO of the TREND Community, and mother of a 14-year-old with Prader-Willi syndrome (PWS), discusses her family’s journey with PWS, including why more research and better data are so important. https://checkrare.com/a-familys-journey-with-prader-willi-syndrome/