ERNs on Air

https://open.spotify.com/episode/2VihltLPdeb7EHViyEANf4 ERNs on Air The latest episode of European Reference Networks (ERNs) on Air, released on 5 October, is hosted by Nora Lázaro, Patient Engagement Manager for ERNs and Healthcare at EURORDIS. In this episode, Nora discusses the patient-led initiative of the Sudden Cardiac Death Letter for Families with Ruth Biller, ePAG Lead in ERN GUARD-Heart, and Lia Crotti, a cardiologist in the network. Together, they discuss how the lived experiences of people affected by rare diseases helped identify an unmet need and highlight the importance of putting patient partnership into practice across ERNs