The JARDIN Hackathon to Seek Solutions to Overcome Technical Barriers in Health Data Exchange: From the Point of Care to European Registry Networks

https://datascience.codata.org/articles/10.5334/dsj-2026-029 This article describes the methods and outcomes of a JARDIN hackathon exploring technical barriers to secure health data exchange between healthcare providers, national registries and ERNs. The authors, including Veronica Popa, our Digital Patient Engagement Manager, present potential solutions to improve the exchange and interoperability of rare disease data.