Support Structure for Meaningful Patient Partnership in the European Reference Networks (ERNs): A Guide for ERN Coordinating Teams

https://www.eurordis.org/publications/support-structures-for-meaningful-patient-partnership-in-the-european-reference-networks/ EURORDIS has published a guide for ERN coordinating teams on embedding meaningful patient partnership across the ERNs. It explores the conditions, approaches and competencies needed to support sustained collaboration between patient representatives, health professionals and ERN project managers.