A Lottery at Birth: Why the EU needs a shared approach to newborn screening August 2026 + + +

https://www.eurordis.org/lottery-at-birth-europe-needs-shared-newborn-screening-approach/ Our latest article explores how fragmented newborn screening (NBS) programmes across Europe can leave children with very different chances of receiving an early diagnosis and timely care, depending on where they are born. The article builds on the joint Position Statement we published in June, calling for stronger EU-level collaboration to help Member States strengthen their NBS programmes and make better use of shared evidence and expertise. https://www.eurordis.org/publications/position-statement-eu-level-collaboration-on-newborn-screening/ Rare disease organisations can still endorse the Position Statement and support our call for a multi-stakeholder European Newborn Screening Group until 30 September. https://form.jotform.com/eurordisforms/endorse-eurordis-nbs-statement