The Remarkable Life of Ibelin to Receive EURORDIS Black Pearl Media and Awareness Raising Award 22 January 2026 +++

https://rarerevolutionmagazine.com/the-remarkable-life-of-ibelin-to-receive-eurordis-black-pearl-media-and-awareness-raising-award/ RARE Revolution Magazine recently covered our announcement that the 2026 EURORDIS Media & Awareness Raising Award will be presented to the Norwegian documentary The Remarkable Life of Ibelin at the EURORDIS Black Pearl Awards on 24 February. The film tells the story of Mats Steen, a young man living with Duchenne muscular dystrophy who found friendship, purpose and community through his World of Warcraft avatar. Our Acting CEO, Virginie Hivert, is quoted in the article reflecting on the documentary’s impact. EURORDIS Black Pearl Awards https://www.eurordis.org/black-pearl-awards/ The Remarkable Life of Ibelin | Official Trailer | Netflix https://www.youtube.com/watch?v=lM_hkJ0Rl-c