How can AI amplify patient voices to improve rare disease communications? 24 February 2026

https://rarerevolutionmagazine.com/how-can-ai-amplify-patient-voices-to-improve-rare-disease-communications/ Written by Claire Inness, scientific services lead, Kristie Marchant, account lead, Meghan Reilly, senior medical writer and Puneet Garcha, account manager, Amiculum Claire Inness, Kristie Marchant, Meghan Reilly and Puneet Garcha are team members from Amiculum, a global independent healthcare consulting and communications agency. They bring extensive experience in healthcare communications, including significant work in rare disease therapy areas. Their combined expertise spans scientific content development, account leadership and strategic services, enabling the delivery of clear, impactful communications for diverse healthcare audiences Rare diseases affect millions worldwide, but each only impacts a tiny percentage of the population. Resources are limited, information fragmented and the pathway to diagnosis is long. For patients and their families, navigating this landscape can feel isolating and overwhelming. Artificial intelligence (AI) gives us the opportunity to change this, not only providing patients with scientifically accurate and credible information but tailoring that information specifically for them.