jueves, 26 de febrero de 2026

How evidence and patient realities can help us to rethink the future of MG care 25 February 2026 By Anna Kole (UCB) with the Rethinking MG project partners, Lutgarde Allard (EuMGA), Giuseppe Turchetti (SSSA) and Vinciane Quoidbach (EBC)

https://rarerevolutionmagazine.com/how-evidence-and-patient-realities-can-help-us-to-rethink-the-future-of-mg-care/ “As a teenager, I sometimes imagined I would grow up to be a mother. It was at least an option that I hoped would be open to me. But living with MG has changed what’s possible. Some days, taking care of myself is already more than I can manage, and I’ve had to accept that motherhood may not be in reach for me. It’s a small, unseen sacrifice, but some days it really gets to me.”

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