Podcast: Rare on Air

https://www.eurordis.org/rare-on-air/ Rare Disease Day bonus series Get ready for Rare Disease Day by tuning into our Rare on Air Stories bonus series, in which we read the stories of people impacted by rare diseases from across the globe. In the latest episode, we hear the story of Léon, who lives with LAMA2-related congenital muscular dystrophy. His mother Hong-Ahh shares her early search for answers and the ongoing efforts to support Léon through physiotherapy and respiratory care. You can also hear Jessa's story, which offers a look into how she has achieved remarkable milestones despite the challenges of chronic illness. 28 February is Rare Disease Day Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. https://www.rarediseaseday.org/