THE GLOBAL ALLIANCE OF PERSONS LIVING WITH A RARE DISEASE +++

https://www.rarediseasesinternational.org/ European Blueprint EURORDIS and Rare Diseases International (RDI) are inviting patient organisations, advocates, and other stakeholders from across the WHO European Region to join our European Regional Task Force on Rare Diseases. This group will gather evidence, experience, and expertise to help shape our development of a European Blueprint for Rare Diseases, to be launched at our European Conference on Rare Diseases and Orphan Products (ECRD 2026). Apply now! Developing a European Blueprint for Rare Diseases: How this work will unfold February 2026 EURORDIS-Rare Diseases Europe is leading a multi-stakeholder initiative to develop a European Blueprint for Rare Diseases – a detailed design for how rare disease policy can be structured, coordinated, and delivered in practice. https://www.eurordis.org/blueprint-for-rare-diseases-coordinating-action-across-europe/ European Regional Task Force on Rare Diseases – Expression of Interest Rare Diseases Europe (EURORDIS), in collaboration with Rare Diseases International (RDI), is establishing the European Regional Task Force on Rare Diseases to bring together stakeholders from across the WHO European Region. https://forms.office.com/pages/responsepage.aspx?id=uv_BBwRMtkK5WUPa44YsSg_8cYkfEgFJkfThrO_639NUQTQ4SkUyNDFSQ1FCM0g2OE5FU0pZT05IOC4u&route=shorturl