jueves, 12 de febrero de 2026
Meet our 2026 Regional Representatives! Raising Youth Voices +++
https://www.rarediseaseday.org/raising-youth-voices/
Raising Youth Voices
Last week’s Raising Youth Voices event, held in Barcelona as part of the Rare Disease Day 2026 campaign, brought together young rare disease advocates from every continent. They shared their personal experiences and highlighted the initiatives they are leading to drive change for people living with rare diseases. You can watch the full panel discussion online. A short film from the day, produced by Fondation Ipsen, will be released soon – stay tuned!
Raising Youth Voices 2026
https://www.youtube.com/live/G9HKPZLKkKk
We shed light on rare diseases to accelerate diagnosis
https://www.fondation-ipsen.org/
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