martes, 1 de enero de 2019

Living with a Rare Disease: stories from patients and families

Living with a Rare Disease: stories from patients and families

Eurordis, Rare Diseases Europe

Living with a Rare Disease

Most rare diseases have no cure, so living with a rare disease is an ongoing learning experience for patients and families. Here is a collection of stories and videos from people who have generously shared their experiences of living with a rare disease. Would you like to share you own experience? Contact us for more information

 

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