miércoles, 14 de junio de 2017

EURORDIS Membership Meeting

EURORDIS Membership Meeting

Eurordis, Rare Diseases Europe

The Voice of Rare Disease
Patients in Europe

EURORDIS Membership Meeting

Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease.
Membership Meeting 2014
The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance policies and services for rare disease patients in their country and local communities. The EURORDIS Membership Meeting provides an opportunity for EURORDIS members to network, sharing best practices and increasing knowledge of issues integral to member organisations and the rare disease community and environment in each member’s country.

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