The Voice of Rare Disease
Patients in Europe
EURORDIS Membership Meeting
Save the date: EURORDIS Membership Meeting 2017 Budapest
The next EURORDIS Membership Meeting (EMM 2017) will take place in Budapest, Hungary at the Danubius Hotel Helia from 19 - 20 May 2017.
The working language of the meeting will be English, with simultaneous translation of the Plenary Session on Friday into Hungarian.
Registration for this event opens January 2017. Please return to this page then for more information on how to register.
EURORDIS is once again offering patient fellowships for up to 40 patient advocates. The deadline for applications is 28 February 2017.
6 patient representatives will have the opportunity to present Innovative strategies, approaches, services or projects that could potentially be useful to other patient groups in a soapbox session on Saturday 20 May. If you are interested in participating, please email email@example.com. Each person will have 5 minutes to present (no slides will be allowed).
We encourage you to book your hotel rooms as soon as possible.
Danubius Hotel Helia
Kárpát utca 62-64., 1133 Budapest, Hungary,
Hotel room rates:
Single room: 98,-EUR/ room /night
Double room: 98,-EUR/ room /night
Danube view: 10,-EUR/ room /night
This 2-day event, is preceded by the following satellite meetings on May 18:
EURORDIS Board of Directors elections
Friday 19 May, will begin with the EURORDIS Annual General Assembly, during which four directors will be elected to the Board of Directors.
If you represent a member organisation of EURORDIS (full members only) and would like to apply for a seat on the board, please contact firstname.lastname@example.org before 26th April 2017.
We look forward to seeing you in Budapest!
Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease.
The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance policies and services for rare disease patients in their country and local communities. The EURORDIS Membership Meeting provides an opportunity for EURORDIS members to network, sharing best practices and increasing knowledge of issues integral to member organisations and the rare disease community and environment in each member’s country.
Previous Membership Meetings: