The Voice of Rare Disease
Patients in Europe
EURORDIS TVPatients in Europe
We are the Families - Fighting to cure MECP2 Duplication Syndrome together!
These are our children. These are our sons, daughters, brothers, sisters, nephews, nieces, cousins and our grandchildren.
Many of our children are unable to speak, walk or use their hands. They have breathing problems, feeding tubes, seizures, anxiety, gastr... (more)
Many of our children are unable to speak, walk or use their hands. They have breathing problems, feeding tubes, seizures, anxiety, gastr... (more)
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