Welcome - Leber hereditary optic neuropathy (LHON) Community
WHAT IS LEBER HEREDITARY OPTIC NEUROPATHY (LHON) ?
Leber's hereditary optic neuropathy (LHON) is a mitochondrial neurodegenerative disease affecting the optic nerve and often characterized by sudden vision loss in young adult carriers.
Source OrphanetLEBER HEREDITARY OPTIC NEUROPATHY (LHON) RESOURCES
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PARTNERS AND PATIENT GROUPS
RareConnect is a patient-led initiative. Patient organisations partner with EURORDIS, itself an international patient organisation, to create communities and provide moderators from within their network. The following patient groups are official partners of this community.