miércoles, 23 de julio de 2014

International Gaucher Day

International Gaucher Day

Specific Rare Disease Days, Weeks, Months
International Gaucher Day: 26 July

The first International Gaucher Day will be celebrated on Saturday 26th July 2014, the 160th birthday of Philippe Gaucher.

The day has been established by the EGA to raise international awareness of Gaucher disease and our slogan for the day is 'Rare but Not Alone'.

How you can participate…

All our member associations will be sent some publicity materials to use: cotton bags for life (because Gaucher disease is for life), pencils, wristbands and balloons.
Some of the ideas our members have suggested to celebrate the day include organising a special event, such as:
  • Mini marathon (walking or running)
  • Cycle ride/golf tournament
  • Coffee morning/tea party
  • Charity dinner
  • Patient and family meeting
  • Exhibition of photos of patients
Show our entire community how you celebrated International Gaucher Day. Upload photos and a short description of your dayhere
Then check out the fun the rest of us had here.

Downloadable materials...

Please use the downloadable materials found below, to promote International Gaucher Day to your friends, colleagues and community:
  • Download banners to include on your website or your email signature by clicking here
  • Logos that you can post to Facebook or Twitter, or even use as your profile picture can be downloaded by clicking here
  • Poster designs to be printed off and displayed wherever takes your fancy (the more prominent the better!) are available by clicking here
  • A alternative version of the official poster is available for you to download and translate in to your own language by clicking here
  • A press release which can be shared with local media clicking here

Different file sizes and formats are available for all of the downloadable assets

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