Welcome to the International Rare Diseases Research Consortium Conference 2013
The International Rare Diseases Research Consortium (IRDiRC) was launched in April 2011 to foster international collaboration in rare diseases research.
IRDiRC will team up researchers and organisations investing in rare diseases research in order to deliver 200 new therapies for rare diseases and means to diagnose most rare diseases by the year 2020. The IRDiRC Conference 2013 will be held in Dublin, Ireland on 16-17 April 2013 and will be organised by the European Commission in association with the Irish presidency of the Council of the European Union.
Conference aims and scope
The conference aims to gather stakeholders from across the globe active in the rare disease area. A top-level programme with a clear research focus will take stock of advances toward IRDiRC goals. There will also be ample opportunities to network with the international rare disease community and a poster session will showcase results from research projects funded by IRDiRC members.
Who should attend?
The conference is open to everyone interested in rare disease research. During an initial registration period, a preference will be given to participants of research projects funded by IRDiRC members.
International rare disease events
3rd Annual World Orphan Drug Congress9-11 April, Washington D.C., USA www.terrapinn.com
4th International Patient Congress and the International Research Conference11-13 April, Barcelona, Spain www.alpha-1barcelona2013.org
First GENCODYS International Conference: Integrative Networks in Intellectual Disabilities14-17 April , Paphos, Cyprus http://www.gencodys.eu
Save the date! 1st Conference of the International Rare Diseases Research Consortium (IRDiRC)16-17 April, Dublin, Ireland, http://jk-events.com/IRDiRC2013/
World Federation of Hemophilia (WFH): World Hemophilia Day 2013 & 13th International Musculoskeletal Congress17 – 21 April, Chicago, USA, http://www.wfh.org/en/news--events/events/world-hemophilia-day-2013-en & http://www.wfh.org/en/page.aspx?pid=771
7th Alstrom Syndrome International Family Conference and Scientific Symposium9-13 May, Massachusetts, USA, alstrom.org
International Meeting of Porphyria PatientsSaturday, 18th of May 2013 in Lucerne, Switzerland, www.porphyrinsandporphyrias.org/
Autoinflammation 2013: 7th International Congress of the International Society of Systemic Auto-Inflammatory Diseases22- 26 May, Lausanne, Switzerland www.autoinflammation2013.com
EURORDIS Membership Meeting 2013 DubrovnikMay 30 – June 1st, 2013, Dubrovnik, Croatia http://www.eurordis.org/content/membership-meetings
4th International DSD (Disorders of Sex Development) Symposium7-9 June, Glasgow, Scotland http://www.gla.ac.uk
12-14 June, Zagreb, Croatia www.eurocat2013.com
12th European Symposium on Congenital Anomalies
World Orphan Drug Congress Asia18 June, Singapore http://www.terrapinn.com
22-25 June, Rotterdam, Netherlands http://www.iccbh.org
6th International Conference on Children's Bone Health
DIA 2013 49th Annual Meeting: Advancing Therapeutic Innovation and Regulatory Science23-27 June, Boston, USA, www.diahome.org
Fifth BHD Symposium-Second HLRCC Symposium in ParisJune 28 - 29, 2013, www.BHD-HLRCC-sympo2013.com
8th International Prader-Willi Syndrome Conference17-21 July, Cambridge UK ipwso.org
Orphan Drugs Summit 201311-13 September, Copenhagen, Denmark www.orphandrugssummit.com
2nd Conference of 'EB-CLINET - Clinical Network of EB Centres and Experts'17-18 September, Salzburg, Austria http://www.eb-clinet.org
Mitochondrial Disease: Translating biology into new treatments2-4 October, Cambridge, UK
7th Annual Sickle Cell and Thalassaemia Conference3-5 October, London, UK /www.guysandstthomasevents.co.uk
Annual EHC Conference – European Haemophilia Consortium4-6 October, Bucharest, Romania www.ehc.eu
ESH International Conference on Multiple Myeloma4-6 October, Dublin, Ireland, http://www.esh.org
17-19 October, Maastricht, The Netherlands, www.erscm.eu
3rd European Rett Syndrome Conference Maastricht
Thalassemia International Federation World Congress19-23 October 2013, Abu Dhabi www.tif2013.org
First International Primary Immunodeficiencies Congress (IPIC)7-8 November, Estoril, Portugal, http://www.ipic2013.com/
4th Annual World Orphan Drug Congress Europe14-15 November, Geneva, Switzerland, www.terrapinn.com