domingo, 17 de febrero de 2013

EURORDIS - The voice of Rare Disease Patients in Europe

EURORDIS - The voice of Rare Disease Patients in Europe

Eurordis, Rare Diseases EuropeThe voice of rare disease patients in Europe

International rare disease events

January 2013

EFGCP Annual Conference 2013 & 20th Anniversary

29- 30 January, Brussels, Belgium
Virtual Future: What Are the Ethical Dimensions of Using Emerging Technologies in Clinical Trials and Research?

February 2013

Epposi’s Advanced Innovation Programme on Health Technology Assessment: “Building a Framework for Societal Benefits Approach to Health Technology Assessment”

4 February, Brussels, Belgium

International Childhood Cancer Awareness Day

20 February, Brussels, Belgium

Genetic haemochromatosis benchmarks

28 February, London, England Programme
A multi-disciplinary pathology meeting providing an in-depth review of current issues from leading practitioners Organised by Dr Alison May on behalf of the Scientific Committee of the ACB.

March 2013

Advanced Therapies Summit 2013

13-14 March, Barcelona, Spain

25th DIA Annual EuroMeeting

4-6 March, Amsterdam, Netherlands

A Joint Meeting of the 3rd International Consultation on Interstitial Cystitis Japan (ICICJ) and the ESSIC Annual Meeting 2013

21-23 March, Kyoto, Japan

April 2013

3rd Annual World Orphan Drug Congress

9-11 April, Washington D.C., USA

First GENCODYS International Conference: Integrative Networks in Intellectual Disabilities

14-17 April , Paphos, Cyprus

Save the date! 1st Conference of the International Rare Diseases Research Consortium (IRDiRC)

16-17 April, Dublin, Ireland,

World Federation of Hemophilia (WFH) 13th International Musculoskeletal Congress

18 – 21 April, Chicago, USA,

May 2013

7th Alstrom Syndrome International Family Conference and Scientific Symposium

9-13 May, Massachusetts, USA,

Autoinflammation 2013: 7th International Congress of the International Society of Systemic Auto-Inflammatory Diseases

22- 26 May, Lausanne, Switzerland

EURORDIS Membership Meeting 2013 Dubrovnik

May 30 – June 1st, 2013, Dubrovnik, Croatia

June 2013

4th International DSD (Disorders of Sex Development) Symposium

7-9 June, Glasgow, Scotland

World Orphan Drug Congress Asia

18 June, Singapore

6th International Conference on Children's Bone Health

22-25 June, Rotterdam, Netherlands

DIA 2013 49th Annual Meeting: Advancing Therapeutic Innovation and Regulatory Science

23-27 June, Boston, USA,

July 2013

8th International Prader-Willi Syndrome Conference

17-21 July, Cambridge UK

October 2013

Mitochondrial Disease: Translating biology into new treatments

2-4 October, Cambridge, UK

Annual EHC Conference – European Haemophilia Consortium

4-6 October, Bucharest, Romania

ESH International Conference on Multiple Myeloma

4-6 October, Dublin, Ireland,

Thalassemia International Federation World Congress

19-23 October 2013, Abu Dhabi

November 2013

First International Primary Immunodeficiencies Congress (IPIC)

7-8 November, Estoril, Portugal,

May 2014

7th European Conference on Rare Diseases & Orphan Products

8-10 May, Berlin, Germany

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