EURORDIS Rare Disease Leadership Award 2013
The EURORDIS Awards recognise excellence in the field of rare diseases. Voted by the EURORDIS Board of Directors from over 100 nominations put forward by representatives of EURORDIS member organisations, volunteers and staff, the EURORDIS Awards promote leadership and achievement in the field of rare diseases. Distributed on the occasion of the sixth Rare Disease Day, the EURORDIS 2013 Awards acknowledge the outstanding contributions of patients' advocacy groups, volunteers, scientists, companies, media, and policy makers toward reducing the impact of rare diseases on people's lives.Congratulations to all of this year’s winners!
Policy Maker Award MEPFrançoise Grossetête
European Rare Disease Leadership AwardDr Ruxandra Draghia-Akli
Volunteer AwardLesley Greene
Scientific AwardDr Ségolène Aymé
Patient Organisation AwardAlstrom Syndrome UK
Received by Kay Parkinson