EURORDIS' news and events from the rare disease community

EURORDIS' news and events from the rare disease community

 

EURORDIS Rare Disease Leadership Award 2013

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The EURORDIS Awards recognise excellence in the field of rare diseases. Voted by the EURORDIS Board of Directors from over 100 nominations put forward by representatives of EURORDIS member organisations, volunteers and staff, the EURORDIS Awards promote leadership and achievement in the field of rare diseases. Distributed on the occasion of the sixth Rare Disease Day, the EURORDIS 2013 Awards acknowledge the outstanding contributions of patients' advocacy groups, volunteers, scientists, companies, media, and policy makers toward reducing the impact of rare diseases on people's lives.

Congratulations to all of this year’s winners!

Policy Maker Award MEP

Françoise Grossetête

European Rare Disease Leadership Award

Dr Ruxandra Draghia-Akli

Volunteer Award

Lesley Greene

Scientific Award

Dr Ségolène Aymé

Patient Organisation Award

Alstrom Syndrome UK
Received by Kay Parkinson

Company Award

Celgene

Company Award

Prosensa

Company Award

Genzyme, a Sanofi Company

Lifetime Achievement Award

Former First Lady of Germany, Mrs Eva Luise Kohler

Page created: 25/02/2013
Page last updated: 27/02/2013