Genetics in Medicine - Table of Contents
TABLE OF CONTENTS
Volume 14, Issue 4 (April 2012)
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Commentary
The past, present, and future of the debate over return of research results and incidental findings
Susan M. Wolf JD
Genet Med 14: 355-357; doi:10.1038/gim.2012.26
Return of results: not that complicated?
James P. Evans MD, PhD and Barbra B. Rothschild MD
Genet Med 14: 358-360; doi:10.1038/gim.2012.8
Special Articles
Managing incidental findings and research results in genomic research involving biobanks and archived data sets FREE
Susan M. Wolf JD, Brittney N. Crock JD, Brian Van Ness PhD, Frances Lawrenz PhD, Jeffrey P. Kahn PhD, MPH, Laura M. Beskow PhD, MPH, Mildred K. Cho PhD, Michael F. Christman PhD, Robert C. Green MD, MPH, Ralph Hall JD, Judy Illes PhD, Moira Keane MA, Bartha M. Knoppers JD, PhD, Barbara A. Koenig PhD, Isaac S. Kohane MD, PhD, Bonnie LeRoy MS, Karen J. Maschke PhD, William McGeveran JD, Pilar Ossorio PhD, JD, Lisa S. Parker PhD, Gloria M. Petersen PhD, Henry S. Richardson JD, MPP, PhD, Joan A. Scott MS, Sharon F. Terry MA, Benjamin S. Wilfond MD and Wendy A. Wolf PhD
Genet Med 14: 361-384; doi:10.1038/gim.2012.23
Mapping the inputs, analyses, and outputs of biobank research systems to identify sources of incidental findings and individual research results for potential return to participants
Heather R Bemmels MS, Susan M Wolf JD and Brian Van Ness PhD
Genet Med 14: 385-392; advance online publication, March 1, 2012; doi:10.1038/gim.2011.69
Opportunities and challenges for the integration of massively parallel genomic sequencing into clinical practice: lessons from the ClinSeq project
Leslie G. Biesecker MD
Genet Med 14: 393-398; advance online publication, February 16, 2012; doi:10.1038/gim.2011.78
Taxonomizing, sizing, and overcoming the incidentalome
Isaac S. Kohane MD, PhD, Michael Hsing PhD and Sek Won Kong MD
Genet Med 14: 399-404; advance online publication, February 9, 2012; doi:10.1038/gim.2011.68
Exploring concordance and discordance for return of incidental findings from clinical sequencing
Robert C. Green MD, MPH, Jonathan S. Berg MD, PhD, Gerard T. Berry MD, Leslie G. Biesecker MD, David P. Dimmock MD, James P. Evans MD, PhD, Wayne W. Grody MD, PhD, Madhuri R. Hegde PhD, Sarah Kalia ScM, Bruce R. Korf MD, PhD, Ian Krantz MD, Amy L. McGuire JD, PhD, David T. Miller MD, PhD, Michael F. Murray MD, Robert L. Nussbaum MD, Sharon E. Plon MD, PhD, Heidi L. Rehm PhD and Howard J. Jacob PhD
Genet Med 14: 405-410; advance online publication, March 15, 2012; doi:10.1038/gim.2012.21
Return of individual research results and incidental findings in the clinical trials cooperative group setting
Michael Ferriere BS and Brian Van Ness PhD
Genet Med 14: 411-416; advance online publication, March 1, 2012; doi:10.1038/gim.2012.14
Intersection of biobanking and clinical care: should discrepant diagnoses and pathological findings be returned to research participants?
Nicole C. Lockhart PhD, Rihab Yassin PhD, Carol J. Weil JD and Carolyn C. Compton MD, PhD
Genet Med 14: 417-423; advance online publication, February 16, 2012; doi:10.1038/gim.2012.11
Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network
Stephanie M. Fullerton DPhil, Wendy A. Wolf PhD, Kyle B. Brothers MD, Ellen Wright Clayton MD, JD, Dana C. Crawford PhD, Joshua C. Denny MD, Philip Greenland MD, Barbara A. Koenig PhD, Kathleen A. Leppig MD, Noralane M. Lindor MD, Catherine A. McCarty PhD, MPH, Amy L. McGuire JD, PhD, Eugenia R. McPeek Hinz MD, Daniel B. Mirel PhD, Erin M. Ramos PhD, MPH, Marylyn D. Ritchie PhD, MS, Maureen E. Smith MS, CGC, Carol J. Waudby MS, Wylie Burke MD, PhD and Gail P. Jarvik MD, PhD
Genet Med 14: 424-431; advance online publication, February 23, 2012; doi:10.1038/gim.2012.15
Broadening research consent in the era of genome-informed medicine
Courtney Kronenthal PhD, Susan K. Delaney MPA and Michael F. Christman PhD
Genet Med 14: 432-436; advance online publication, March 15, 2012; doi:10.1038/gim.2011.76
Engaging children in genomics research: decoding the meaning of assent in research
Benjamin S. Wilfond MD and Douglas S. Diekema MD, MPH
Genet Med 14: 437-443; advance online publication, February 9, 2012; doi:10.1038/gim.2012.9
An empirical examination of the management of return of individual research results and incidental findings in genomic biobanks
Gina Johnson PhD, Frances Lawrenz PhD and Mao Thao BA, BS
Genet Med 14: 444-450; advance online publication, February 23, 2012; doi:10.1038/gim.2012.20
Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study
Juli Murphy Bollinger MS, Joan Scott MS, CGC, Rachel Dvoskin PhD and David Kaufman PhD
Genet Med 14: 451-457; advance online publication, March 8, 2012; doi:10.1038/gim.2011.66
A closer look revisited: are we subjects or are we donors?
Rebecca Fisher MLIS
Genet Med 14: 458-460; advance online publication, February 23, 2012; doi:10.1038/gim.2012.6
Taking aims seriously: repository research and limits on the duty to return individual research findings
Pilar Ossorio PhD, JD
Genet Med 14: 461-466; advance online publication, March 8, 2012; doi:10.1038/gim.2012.5
Secondary researchers’ duties to return incidental findings and individual research results: a partial-entrustment account
Henry S. Richardson PhD and Mildred K. Cho PhD
Genet Med 14: 467-472; advance online publication, February 23, 2012; doi:10.1038/gim.2012.12
The legal risks of returning results of genomics research
Ellen Wright Clayton MD, JD and Amy L. McGuire JD, PhD
Genet Med 14: 473-477; advance online publication, February 9, 2012; doi:10.1038/gim.2012.10
Practical implementation issues and challenges for biobanks in the return of individual research results
Marianna J. Bledsoe MA, William E. Grizzle MD, PhD, Brian J. Clark MBChB, FRCPath and Nikolajs Zeps BSc, PhD
Genet Med 14: 478-483; advance online publication, February 9, 2012; doi:10.1038/gim.2011.67
International normative perspectives on the return of individual research results and incidental findings in genomic biobanks
Ma’n H. Zawati and Bartha Maria Knoppers
Genet Med 14: 484-489; advance online publication, February 16, 2012; doi:10.1038/gim.2012.13
Offering aggregate results to participants in genomic research: opportunities and challenges
Laura M. Beskow MPH, PhD, Wylie Burke MD, PhD, Stephanie M. Fullerton D.Phil and Richard R. Sharp PhD
Genet Med 14: 490-496; advance online publication, January 26, 2012; doi:10.1038/gim.2011.62
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