Rare Disease Communities helps patients to understand their condition, connect with other patients and provides tools for living with their diseases
Understand. Daily life with a rare disease.
- - Browse patient testimonies,
- - Share images & photos,
- - Find explanations,
- - Contact patient associations
Meet! Connect with other patients.
- - Start conversations,
- - Interact with others,
- - Ask questions,
- - Meet other patients or families
Learn. Learn more and find resources.
- - Contact expert patients,
- - Become informed,
- - Download,
- - Find information adapted to your needs