EURORDIS ► NEW MEMBERS

New members

EURORDIS welcomes new members Full members Batten Disease Family Association UK www.bdfa-uk.org.uk Represents: Batten disease Cystinosis Foundation of the UK UK www.vsn.nl Represents: cystinosis Fabry Support & Informatie Groep Nederland Netherlands www.fabry.nl Represents: Fabry disease National Association of phenylketonuria (PKU) and similar inherited metabolic disorders (DMP) Czech republic www.nspku.cz  Represents: phenylketonuria Associazione Italiana Miastenia e Malattie Immunodegenerative - Amici del Besta onlus Italy www.miastenia.it Represents: Myasthenia gravis Vereniging Spierziekten Nederland - Dutch Association For Neuromuscular Disease Netherlands www.vsn.nl Represents: Muscular dystrophy Assocciazione Persone con Malattie Reumatiche - APMAR Onlus Italy www.apmar.it Represents: rare (Scleroderma, Sjogren disease) and not rare auto immune rheumatic diseases Associate members Barretstown Serious Fun Ireland www.barretstown.org  Summer camp Pro Rare Austria, Allianz für seltenen Erkrankungen Austria www.prorare-austria.org Umbrella organisation Sobrevivire vzw Belgium http://sites.google.com/site/sobrevivirevzw/welkom/presentation Umbrella organisation View all EURORDIS member organisations

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