jueves, 16 de octubre de 2014

30 years of experience living with MEN2a - Multiple Endocrine Neoplasia (MEN) community - RareConnect

30 years of experience living with MEN2a - Multiple Endocrine Neoplasia (MEN) community - RareConnect

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30 years of experience living with Multiple Endocrine Neoplasia, Type 2A (MEN2a)

30 years of experience living with MEN2a

30 years of experience living with MEN2a looking to share support and understanding.
Written by Rivaer, published 10 days ago.
30 years of experience living with MEN2a

29 years ago I was diagnosed with MEN2a I was six. My grandmother passed from MEN before I knew her. I remember my aunt vaguely. Mostly her absence affected me as she and I were close and she passed from MEN at age 35. My father passed from surgery complications related to MEN when I was 19. I am 34 now and I don't know what life is without MEN2. Age six I had my thyroid removed, at 18 less than a year before losing my father I had my first pheocromacytoma, and my 2nd pheo came at age 25.
My dad was my support for so many years as I learned to live with MEN. I have joined this community because I feel I have a lot of support and understanding to give. And I think being able to be there for others is something that will also be a blessing to me as I have no one in my life anymore that understands MEN2.
Written by Rivaer, published 10 days ago.

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