Highlights from Prague: ECRD 2026 sets the course for coordinated action June 2026

https://www.eurordis.org/highlights-from-ecrd-2026/ Our 13th European Conference on Rare Diseases & Orphan Products (ECRD 2026) has concluded after two days of landmark discussions and strong political momentum. Held under the theme Rare Diseases in a Changing and Competitive Europe, the conference brought together patients, policymakers, healthcare professionals, researchers and industry – online and in Prague on 3–4 June – around a single, urgent message: Europe needs a coordinated, comprehensive EU Action Plan on Rare Diseases, and the time to act is now.