Mastocytosis: before, during and after diagnosis 17 June 2026 Written by Emma Bishop, RARE Revolution

https://rarerevolutionmagazine.com/mastocytosis-before-during-and-after-diagnosis/ Living with mastocytosis means navigating unpredictable, sometimes life‑threatening reactions alongside chronic pain, fatigue and fear. In April 2026, RARE Revolution hosted our 25th RARE Rev-inar. Sponsored by Blueprint Medicines, a Sanofi company, this discussion sees patient advocate Shawna Hull share her own personal journey with mastocystosis, and physician-scientist Dr Polina Pyatilova discuss the complexities of the disease and how a strong patient-doctor relationship allows for optimal care Written by Emma Bishop, RARE Revolution