Health Data Ethics & Regulatory Frameworks in Rare Disease Research

Health Data Ethics & Regulatory Frameworks in Rare Disease Research Discover the role of health data in rare disease research, exploring the ethics and regulatory frameworks governing data use. https://www.futurelearn.com/courses/health-data-ethics-and-regulatory-frameworks-in-rare-disease-research Health data ethics Interested in health data's role in rare disease research? EURORDIS and partners within the European Joint Programme on Rare Diseases have developed the FutureLearn course Health Data Ethics and Regulatory Frameworks in Rare Disease Research. Join guided discussions, engage with experts (including EURORDIS’ Head of Research Policy, Roseline Favresse) and explore key topics, including data ethics, privacy, and regulatory frameworks.