RARE Round-up - keeping you up-to-date

https://editions.rarerevolutionmagazine.com/html5/reader/production/default.aspx?pubname=&edid=cfec555e-0bf6-4813-9494-6b9538dbfd94&pnum=52 A clinical trial is never just a study—it’s a vessel for hope. But when programmes fail or are discontinued, families are often left with silence instead of answers. Drawing on her frontline experience as a nurse and now as head of patient engagement at Azafaros, Gisela Linthorst unpacks the ethical “duty of care” that remains when the science falls short.