viernes, 17 de abril de 2026

Challenges and opportunities for the use of telehealth in rare disease diagnosis, treatment, research, and education: key opinion leader interviews by the IRDiRC telehealth task force

https://journals.sagepub.com/doi/10.1177/26330040261427023 This article published by the International Rare Diseases Research Consortium (IRDiRC),of which EURORDIS is a member, explores the potential of telehealth to transform care, research and training in rare diseases. Drawing on insights from international experts, it highlights how telehealth can improve access to specialist expertise and support more inclusive research, while also outlining key challenges related to infrastructure, regulation, and equitable access across healthcare systems. https://irdirc.org/

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