European Parliament Event on Rare Diseases: Placing Patients at the Centre of a Future European Framework April 2026

European Parliament Event on Rare Diseases: Placing Patients at the Centre of a Future European Framework April 2026 Date: 23 April 2026 📍 Location: European Parliament, Brussels and Online ⏰ Time: 09:00-11:00 CEST https://www.eurordis.org/european-parliament-event-on-rare-diseases/ European Parliament EURORDIS and MEP Nicolás González Casares are organising a European Parliament event to bring patient voices directly into discussions on a future EU framework for rare diseases. As the Parliament advances work on an EU Action Plan, this event will provide a dedicated space for patient organisations, advocates and healthcare professionals to exchange perspectives and help ensure that future policy reflects patients’ lived experiences.