Public Meeting: FDA Rare Disease Day 2026 February 23, 2026

https://www.fda.gov/news-events/fda-meetings-conferences-and-workshops/public-meeting-fda-rare-disease-day-2026-02232026?utm_medium=email&utm_source=govdelivery FDA is hosting a virtual public meeting on February 23rd in observance of Rare Disease Day. We encourage you to participate and help advance rare disease treatment by sharing your treatment experiences. As this important day approaches, we invite you to contribute to CURE ID. Developed by FDA and NIH, CURE ID is a free platform where patients, caregivers, and clinicians can report their experiences using existing drugs in new ways to treat rare diseases. Approved reports are displayed to the public, once personal details have been removed from the data. This enables the community to contribute to a public database that may help identify new treatment options. Help find treatments for challenging diseases CURE ID is a free platform to share novel uses of existing drugs and explore what others have tried. The goal is to identify potential treatments for diseases without good treatment options. https://cure.ncats.io/home?utm_medium=email&utm_source=govdelivery