Rett syndrome Who cares for the carer? 4 October 2025

https://rarerevolutionmagazine.com/digitalspotlight/who-cares-for-the-carer/ Becky Davis is a dedicated caregiver who has devoted her life to supporting her daughter Rosie, who lives with Rett syndrome. Becky has navigated the challenges of fragmented healthcare and social support systems, advocating for better support for rare disease carers. Her story highlights the immense emotional and physical toll on family carers and the need for comprehensive support systems.