RARE Rev-inar episode 022: Understanding anaphylaxis in the context of mastocytosis Fecha y hora 7 oct 2025 11:30 a. m.

https://us02web.zoom.us/webinar/register/WN_0NUjiixtSxycTQ6kN6_WaQ#/registration Don't miss our upcoming RARE REV-inar: "Empowering patients: Co-designing clinical trials for better outcomes"! Join us tomorrow, October 7th 2025, at 10.30am ET / 3.30pm BST to explore what anaphylaxis looks like in mastocytosis, how does it differ from general allergic reactions, and why it’s so complex, as well as lived experience – navigating daily risk, exploring the emotional, logistical, and relational impact of living with the constant possibility of anaphylaxis. We're thrilled to feature Dr Andrew Whyte. Andrew is a consultant allergist and immunologist at the University Hospitals Plymouth in the UK, who specialises in systemic mastocytosis, a rare condition that can cause multiple symptoms including anaphylaxis. Andrew manages a clinic, seeing 60-70 patients yearly, where he supports them with disease management, including the challenging aspects of living with increased risk of anaphylaxis Katie Preston-Toepfer. Katie is a Sydney-born Australian writer, artist, creator and business owner. She is a wife and mother of two children. Katie and her family currently reside in Brisbane. Katie aims to advocate and openly share her journey with SM to raise awareness and understanding of rare disease and its impacts through her Instagram profile Charlotte Lane. Charlotte is a parent and carer of a child with indolent systemic mastocytosis and frequent idiopathic anaphylaxis. She previously served as a trustee for the UK Mastocytosis Support Group, working to support patients and carers, raise awareness, and promote anaphylaxis education among healthcare professionals and the community. . We look forward to seeing you there! Warm regards The RARE Revolution Team