The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers | Orphanet Journal of Rare Diseases | Full Text

The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers | Orphanet Journal of Rare Diseases | Full Text

The challenges of living with and managing epidermolysis bullosa: insights from patients and caregivers

Little information is available regarding the burden of living with and managing epidermolysis bullosa, including the distinct challenges faced by patients with different disease types/subtypes.

Authors:Anna L. Bruckner, Michael Losow, Jayson Wisk, Nita Patel, Allen Reha, Hjalmar Lagast, Jamie Gault, Jayne Gershkowitz, Brett Kopelan, Michael Hund and Dedee F. Murrell

Citation:Orphanet Journal of Rare Diseases 2020 15:1

Content type:Research

Published on: 3 January 2020

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