Lewy Body Dementia Association’s Research Centers of Excellence Program: Inaugural Meeting Proceedings

Bethany Peterson,
Melissa Armstrong,
Douglas Galasko,
James E. Galvin,
Jennifer Goldman,
David Irwin,
Henry Paulson,
Daniel Kaufer,
James Leverenz,
Angela Lunde,
Ian G. McKeith,
Andrew Siderowf,
Angela Taylor,
Katherine Amodeo,
Matt Barrett,
Kimiko Domoto-Reilly,
John Duda,
Stephen Gomperts,
Neill Graff-Radford,
Samantha Holden,
Lawrence Honig,
Daniel Huddleston,
Carol Lippa,
Irene Litvan,
Carol Manning,
Karen Marder,
Charbel Moussa,
Chiadi Onyike,
Fernando Pagan,
Alexander Pantelyat,
Victoria Pelak,
Kathleen Poston,
Joseph Quinn,
Irene Richard,
Liana S. Rosenthal,
Marwan Sabbagh,
Douglas Scharre,
Sharon Sha,
Holly Shill,
Yasar Torres-Yaghi,
Tina Christie,
Todd Graham,
Ian Richards,
Mike Koehler and
Brad BoeveEmail author View ORCID ID profile

Alzheimer's Research & Therapy201911:23

https://doi.org/10.1186/s13195-019-0476-1

Published: 13 March 2019

Abstract

The first Lewy Body Dementia Association (LBDA) Research Centers of Excellence (RCOE) Investigator’s meeting was held on December 14, 2017, in New Orleans. The program was established to increase patient access to clinical experts on Lewy body dementia (LBD), which includes dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD), and to create a clinical trials-ready network. Four working groups (WG) were created to pursue the LBDA RCOE aims: (1) increase access to high-quality clinical care, (2) increase access to support for people living with LBD and their caregivers, (3) increase knowledge of LBD among medical and allied (or other) professionals, and (4) create infrastructure for a clinical trials-ready network as well as resources to advance the study of new therapeutics.