The Voice of Rare Disease
Patients in Europe
Nominate your rare disease star for a EURORDIS Black Pearl Award!
Nominate the person or organisation that you think deserves recognition for their outstanding efforts to improve the lives of those affected by rare diseases for a 2019 EURORDIS Black Pearl Award!
Don’t miss your chance to nominate the person, patient organisation or company that has gone the extra mile by making your nomination via blackpearl.eurordis.org/nominate by 20 August. All nominations must be submitted in English. Submissions can be made by filling out the form or by video.
The EURORDIS Black Pearl Awards honour the outstanding efforts of individuals and organisations across the rare disease community. They are presented to patient advocates, patient organisations, policy makers, scientists, companies and media.
Anyone from anywhere in the world can make a nomination for any of the following categories:
- Company Award for Health Technology New category for 2019!
- Photo Award - would you like to submit your photo to be in with a chance of winning the EURORDIS Photo Award 2019? Submission for photo entries will open via blackpearl.eurordis.org from November 2018!
Nominations for the EURORDIS Black Pearl Awards are shortlisted by a selection committee and the winners selected by the EURORDIS Board of Directors. Read more about last year's awardees.
PHA Europe, recipients of the EURORDIS Patient Organisation Award 2018, said of their win, “Receiving this award was a huge honour and an unprecedented acknowledgement of what represents 15 years of hard work for the European pulmonary hypertension community; supporting and empowering our member associations and advocating for better access to treatment and to organ transplant. But it means so much more to us than this; it provides us with new energy and fresh motivation to do more and do better. It emboldens us to speak even louder so that our voice will carry to the countries where rare diseases are currently ignored. We extend our warmest thanks to EURORDIS for this special accolade and its trust in our work. And a heartfelt thanks to our President, Board, Staff, member associations, volunteers, friends and supporters and all those who have made this success possible.”
The EURORDIS Black Pearl Awards 2019 will be presented at a ceremony held in Brussels on 12 February 2019 to mark the occasion of Rare Disease Day.
Companies can find out more about partnering with EURORDIS for the Black Pearl Awards.
Eva Bearryman, Communications Manager, EURORDIS