miércoles, 1 de febrero de 2017

EHC Program Updates: New Gout Summaries for Clinicians and Consumers; Upcoming Webinar on ROPR Outcome Measures Framework Repository

EHC Program Updates: New Gout Summaries for Clinicians and Consumers; Upcoming Webinar on ROPR Outcome Measures Framework Repository

Effective Health Care Program - Helping You Make Better Treatment Choices

New AHRQ Publications Summarize Evidence on the Management of Gout

New evidence-based publications from AHRQ can help clinicians and patients make informed decisions about managing gout, a common form of arthritis that results from excessive uric acid in the blood and causes severe pain, swelling, redness and joint stiffness.
A publication for clinicians summarizes findings of two AHRQ-funded systematic reviews that examined the evidence about the accuracy and safety of diagnostic tests and the effectiveness of treatments for patients with acute gout attacks. The clinician publication cites a strong body of evidence supporting the effectiveness of several treatments and therapies for gout but emphasizes the importance of clinicians and patients working together to decide which approach might be best. 
 A plain-language publication is also available for patients:

Outcome Measures Framework Repository – Stakeholder Webinar

Please join us for a web-based stakeholder forum to discuss a new AHRQ-funded effort to develop a repository of standardized outcome measures for patient registries. The forums will be held on February 21, 2017 at 2:00 p.m. ET and February 23, 2017 at 11:00 a.m. ET.  We hope you can attend one of them.
Significant variation exists in both the types and definition of outcome measures used in patient registries, even within the same clinical area. This variation reduces the utility of registries, making it more difficult to compare, link, and aggregate data across the spectrum of clinical care and reporting. To address this variation, AHRQ developed the Outcome Measures Framework (OMF), a generic content model for developing standardized outcome measures in specific disease areas.
AHRQ is now in the process of developing standardized libraries of outcome measures in five condition areas. The standardized measures will be made available in an online repository, accessible through the Registry of Patient Registries (RoPR) site. Registry sponsors will be able to submit additional measures to the repository to expand its scope and further promote harmonization across registries.
In December, ARHQ hosted two open door forums focused on an approach to classifying and harmonizing outcome measures using the OMF and developing standardized data libraries. Distinct from these forums, the February webinars will focus on the design and content of the online repository. Specifically, the project team will present plans for the repository and seek feedback from participants about both the process for submitting new measures as well as the search capabilities for those seeking information on existing measures.
To register, please click on one of the links below (note, it is not necessary to attend both forums):
 Please contact the project team with any questions at RoPR@ahrq.hhs.gov.
Effective Health Care Program

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