domingo, 6 de septiembre de 2015

Prevalence and correlates of receiving and sharing high-penetrance cancer genetic test results: findings from the Health Information National Trend... - PubMed - NCBI

Prevalence and correlates of receiving and sharing high-penetrance cancer genetic test results: findings from the Health Information National Trend... - PubMed - NCBI



 2015;18(2):67-77. doi: 10.1159/000368745.

Prevalence and correlates of receiving and sharing high-penetrance cancer genetic test results: findings from the Health Information National Trends Survey.

Abstract

BACKGROUND/AIMS:

The aim of this study was to explore the prevalence and correlates of receiving and sharing high-penetrance cancer genetic test results.

METHODS:

Participants completed the population-based, cross-sectional 2013 Health Information National Trends Survey. We examined sociodemographic characteristics of participants reporting having had BRCA1/2 or Lynch syndrome genetic testing, and sociodemographic and psychosocial correlates of sharing test results with health professionals and family members.

RESULTS:

Participants who underwent BRCA1/2 or Lynch syndrome genetic testing (n = 77; 2.42% of respondents) were more likely to be female and to have a family or personal history of cancer than those not undergoing testing. Approximately three-quarters of participants shared results with health professionals and three-quarters with their family; only 4% did not share results with anyone. Participants who shared results with health professionals reported greater optimism, self-efficacy for health management, and trust in information from their doctors. Participants who shared results with their family were more likely to be female and to have a personal history of cancer, and had greater self-efficacy for health management, perceived less ambiguity in cancer prevention recommendations, and lower cancer prevention fatalism.

CONCLUSIONS:

We identified several novel psychosocial correlates of sharing genetic information. Health professionals may use this information to identify patients less likely to share information with at-risk family members.
© 2014 S. Karger AG, Basel

PMID:
 
25427996
 
[PubMed - indexed for MEDLINE] 
PMCID:
 
PMC4405401
 [Available on 2016-01-01]

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