Prevalence and correlates of receiving and sharing high-penetrance cancer genetic test results: findings from the Health Information National Trend... - PubMed - NCBI
Prevalence and correlates of receiving and sharing high-penetrance cancer genetic test results: findings from the Health Information National Trends Survey.
Abstract
BACKGROUND/AIMS:
The aim of this study was to explore the prevalence and correlates of receiving and sharing high-penetrance cancer genetic test results. METHODS:
Participants completed the population-based, cross-sectional 2013 Health Information National Trends Survey. We examined sociodemographic characteristics of participants reporting having had BRCA1/2 or Lynch syndrome genetic testing, and sociodemographic and psychosocial correlates of sharing test results with health professionals and family members. RESULTS:
Participants who underwent BRCA1/2 or Lynch syndrome genetic testing (n = 77; 2.42% of respondents) were more likely to be female and to have a family or personal history of cancer than those not undergoing testing. Approximately three-quarters of participants shared results with health professionals and three-quarters with their family; only 4% did not share results with anyone. Participants who shared results with health professionals reported greater optimism, self-efficacy for health management, and trust in information from their doctors. Participants who shared results with their family were more likely to be female and to have a personal history of cancer, and had greater self-efficacy for health management, perceived less ambiguity in cancer prevention recommendations, and lower cancer prevention fatalism. CONCLUSIONS:
We identified several novel psychosocial correlates of sharing genetic information. Health professionals may use this information to identify patients less likely to share information with at-risk family members. © 2014 S. Karger AG, Basel
- PMID:
- 25427996
- [PubMed - indexed for MEDLINE]
- PMCID:
- PMC4405401
- [Available on 2016-01-01]
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