EHC Update: September 30th Webinar on Data Harmonization for Patient Registries
Please join the Agency for Healthcare Research and Quality (AHRQ) on Wednesday, September 30, 2015 from 1-2 pm ET for a free webinar focusing on data harmonization for patient registries. Data harmonization is the process of generating common data elements that can be used across studies.
- Eric Gemmen, Ph.D., Senior Director, Epidemiology and Outcomes Research, Real-World & Late Phase Research, Quintiles
- Michelle B. Leavy, M.P.H., Manager, Health Policy, Real-World & Late Phase Research, Quintiles
In this webinar, Dr. Gemmen will explore the differences in how data elements are defined and collected across studies and discuss the rationale for data harmonization. Examples will focus on patient-reported outcomes (PROs) in the areas of pain and quality of life, with discussion of how these PROs can be converted into utilities to support indirect comparisons across studies. Additionally, the presentation will review the unique considerations that arise when attempting to harmonize data from electronic health records (EHRs) and clinical studies.
This webinar is part of a series hosted by the Agency for Healthcare Research and Quality (AHRQ) Registry of Patient Registries (RoPR) project. The RoPR is a central, searchable database of patient registries that is integrated with ClinicalTrials.gov. In addition to providing information on existing registries, AHRQ is developing the RoPR as a knowledge portal for patient registries, with work underway to add information on registry best practices drawn from the widely used AHRQ publication, Registries for Evaluating Patient Outcomes: A User’s Guide, a web-based discussion forum, and tools for supporting the development and use of standardized outcome measures.
To register for this webinar go to https://
quintilesconferencing.webex. com/quintilesconferencing/j. php?RGID= r9f53df599c8b90e324922b33ce965 e5e
To access RoPR tools and resources on the EHC Web site, go to http://www.
effectivehealthcare.ahrq.gov/ search-for-guides-reviews-and- reports/?pageaction= displayproduct&productID=1897.
Effective Health Care