miércoles, 25 de marzo de 2015

Fetal AntiConvulsant Syndromes, the Community - RareConnect

Fetal AntiConvulsant Syndromes, the Community - RareConnect


Online Communities for Rare Disease Patients
New community for fetal anticonvulsant syndromes, a disease caused when antiepileptic medications affect the foetus during pregnancy

Welcome - Fetal AntiConvulsant Syndromes Community

What is Fetal AntiConvulsant Syndromes ?

The AntiConvulsant Syndromes are caused when AntiEpileptic medications affect the Fetus used during pregnancy.
AntiConvulsant medication is used not only for epilepsy, but migraine, pain, mental health problems and bipolar disorder.

Fetal AntiConvulsant Syndromes or FACS for short, is a complex syndrome with a number of disabilities; ranging from Congenital abnormalities, called malformations, are conditions that are present at birth (congenital). There are numerous variations of congenital malformations of the bone and soft tissue of the head and spine, including neural tube defects such as spina bifida and heart. Cognitive (Cognitive delay usually refers to a developmental delays. That means that an individuals cognitive abilities do not match the expectations of other children of the same age group) problems such as autism, dyslexia etc. communication problems such as language delay and mental health problems and low IQ. If one child has FACS within a family unit, then there will be a 55% likelihood that other siblings will be too.

Latest Member Stories


Facs Syndrome and my family

by Emma4facs published about 14 hours ago No comment
I was diagnosed with Epilepsy aged 12 having suffer regular seizures both Grand Mal/ Tonic Clonic and abscent seizures. I was medicated with the me...

The Lost Children of Sodium Valproate

by jocozens published 11 days ago No comment
My Name is Jo Cozens; I am the chairperson of OACS, I was first diagnosed with Juvenile Myoclonic Epilepsy & Photosensitive Epilepsy when I was 17,...

Partners and Patient Groups

RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community.

Meet our members

  • Emma4facs
  • Ammolite
  • 123456789
  • jocozens
  • Lou74

Latest Fetal AntiConvulsant Syndromes Community Activity

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