Are you facing difficulties accessing your treatment ? Please report them to us Survey

Are you facing difficulties accessing your treatment ? Please report them to us Survey

PATIENTS ADVANCING RESEARCH

Patient-driven initiatives and actions to foster rare disease research Are you facing difficulties accessing your treatment? Please report them to us by filling out this survey We would appreciate if you could take a few minutes to complete this anonymous questionnaire. Concise, short and accurate answers are preferred. Please take your time. The collected data will be processed by trained staff in order to point out (via the reports which will be available), the existing problems to the National Health Authorities and engage in a dialogue with them. We do not have the resources to respond to individual cases. We will not communicate the results directly to you, but you will be able to read the outcomes of this campaign on the EURORDIS website (a specific “Access Campaign” page will be created). Thank you for your time.  Founded in 1997, the European Organisation for Rare Diseases (EURORDIS) is a non-governmental patient-driven alliance of organisations and individuals active in the field of rare diseases in Europe. EURORDIS represents over 600 rare disease patient organizations in more than 50 countries, covering more than 4000 rare diseases. For more information:www.eurordis.org